tag:blogger.com,1999:blog-9073307022730595940.post4911063814368871378..comments2024-01-08T14:24:09.348-05:00Comments on Life; Paralyzed: Planning Ahead, Because You Never Know.Chrissyhttp://www.blogger.com/profile/00069146517819619339noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-9073307022730595940.post-45108801398520418332011-03-28T21:46:06.157-04:002011-03-28T21:46:06.157-04:00I completely agree about needing a Living Will. If...I completely agree about needing a Living Will. If my mom had had one, my dad and I would have been saved a tremendous amount of stress and heartache. Instead of knowing for sure what she would have wanted, we had to struggle to remember bits and pieces of conversations and wonder how those applied to the current situation. It was awful. I'm going to get all of my affairs in order so that should anything ever happen to me, Edwin and/or my dad won't have to go through that again.Erinhttps://www.blogger.com/profile/04596218906801998105noreply@blogger.comtag:blogger.com,1999:blog-9073307022730595940.post-67023534639247984072011-03-28T14:42:05.368-04:002011-03-28T14:42:05.368-04:00Hi Chrissy,
One of my fellow disabled friends on F...Hi Chrissy,<br />One of my fellow disabled friends on Facebook sent me a link to your blog, so I've read several of your posts over the past few days. First of all, I'll start by introducing myself. My name is Heather, I'm 26 and I was paralyzed in a car accident in 2003 when I was 19. I'm a C2 quadriplegic and I have enjoyed reading your blog and finding out what your life is like as a disabled person.<br /><br />I wish I had more advice to offer when it comes to the dysreflexia you experience. I've actually never experienced it, but I know a lot about it from what I learned in rehab. It seems like you have so many things that cause you pain and physical discomfort, and I'm sorry! I know how awful it is to be in pain and not be able to do anything about it!<br /><br />My injury was incomplete, and I have sensation from head to toe. This isn't very common, even for people with incomplete injuries, but I'm very grateful that I can feel, even though a lot of the sensations I feel are painful. I have a lot of neuropathic pain in my bottom, hands, lower legs and feet. Sometimes the pain is so intense that it's hard to focus on anything else. I know YOU KNOW what I'm talking about!<br /><br />I appreciate how honest you are in your blog posts. I can relate to so many of the physical and emotional things you touch on in your blog. I also feel very much like a burden to my family (especially my mom) at times.<br /><br />My heart absolutely breaks for you when I read about your internal conflict of wanting to die, but not being sure what will happen to your soul and not knowing if there is a God, etc. I want you to know that there most definitely is a God. You are one of His children, and He loves you. You're probably thinking, "If that's true, then why has he forsaken and forgotten me?" A lot of times it's not clear why God allows bad things to happen to his people, but there's always a reason.<br /><br />I write a blog called Paralyzed with Joy (paralyzedwithjoy.blogspot.com), so check it out if you like, and/or e-mail me at heather_i_johnson@yahoo.com.<br /><br />Take care!<br />– HeatherHeather (Paralyzed with JOY!)https://www.blogger.com/profile/04619560036712321777noreply@blogger.comtag:blogger.com,1999:blog-9073307022730595940.post-36523942111057200772011-03-28T13:04:46.414-04:002011-03-28T13:04:46.414-04:00I agree completely that everyone should get some f...I agree completely that everyone should get some form of documentation of their wishes. I got a POA and Living Will when my pregnancy got more complicated and the chances of emergency c-section were increased. As well as the possibility of Adam being gone during it. The POA was good until after she was born but I still have my Living Will.<br /><br />I also spoke to my doctor about my wishes about hysterectomy in case of bleeding as well as what to do if it was a choice between me or kaylin. I knew giving birth normally ends really well but could go terribly wrong. I'm glad I had it all worked out just in case. It gave me peace of mind during the procedure. I'm also glad I have this type of stuff because now having a daughter I really need to make sure my wishes are carried out. Luckily with the living will and Adam knowing everything I want, I know things will be done right.<br /><br />I don't think it's morbid to talk/think about this or get it done. It's necessary and smart to be prepared for anything in life.KSnyder06https://www.blogger.com/profile/13563287713172269483noreply@blogger.com